Life With Pediatric Liver Disease - Alagille Syndrome: Overview, Updates in Testing and Treatments

Join us for in-depth look at this rare genetic condition that affects the liver, heart, and other organs in children. This video provides updates on the latest advancements in diagnostic testing, treatment options, and management strategies for Alagille Syndrome, empowering families and healthcare providers with the knowledge to navigate the challenges of living with the condition. It also highlights ongoing research and potential future therapies to improve outcomes for affected individuals. We are joined by William F. Balistreri, MD, Dorothy M. M. Kersten Professor of Pediatrics, Director Emeritus, Pediatric Liver Care Center, Medical Director Emeritus, Liver Transplantation, Program Director Emeritus, Fellowship in Transplant Hepatology, Professor, UC Department of Pediatrics and Emily Vincent, RN, Program Manager the Liver Center, The Center for Undiagnosed and Rare Liver Disease. Timestamps: 0:00 - Welcome and introduction by Morgan Harrington, MPH, CHES®, National Coordinator, Programs 1:59 - Introduction of Dr. Balistreri by Emily Vincent 3:30 - Alagille Syndrome: Progress in Recognition and Management presented by Dr. Balistreri 54:30 - Question and Answer 1:14:06 - Closing Remarks Links as mentioned in the presentation: American Liver Foundation website: https://liverfoundation.org/ ALGSA: Leading the Fight for Alagille Syndrome Families World website: https://alagille.org/ Attend an Event: 2025 Cholestatic Liver Disease Summit: https://alagille.org/get-involved/202... Life with Pediatric Liver Disease: American Liver Foundation Support Group: https://liver.news/fbgba American Liver Foundation Patient Registry: https://patientregistry.liverfoundati... Inborn Metabolic or Genetic Bile Acid Deficiency Vitamins and Supplements - HealthWell Foundation: https://www.healthwellfoundation.org/... Management of adults with Alagille syndrome - Hepatology International: https://link.springer.com/article/10.... To join our mail list visit https://liver.news/llwmail. If you've liked what you've seen on this video, then please consider clicking the red "Subscribe" button to be notified when new videos from the American Liver Foundation are posted. Click "Like" and "Share" this with your friends. Leave a comment below.